IBD Resources

At the Children’s IBD Center at Mount Sinai, we believe that providing more accurate information about inflammatory bowel disease to patients and families will make it easier to manage the disease. Among many resources available through the Center are:

Gut Feelings New Program!

“GUT FEELINGS” is a special program that matches IBD parents/patients with families who also have the same diagnosis. Through these connections with others who share a similar journey, parents and patients often feel comforted and understood. Talking with other families who are further along in diagnosis or treatments is a vital part of helping families cope with the challenges of IBD.

“Gut Feelings” provides “mentors” to newly diagnosed patients and their families or to those deciding on new treatments and/or medical plans. “Mentors” are parents who have volunteered to offer their insights and share their own experiences with other families.  New families are assessed by the IBD team in order to match them with an appropriate “mentor”.

If you are interested in being matched with a “mentor,” please call 212-241-7364 or send an email to bambi.fisher@mountsinai.org

Mount Sinai/CCFA Teen Alliance New Program!

Together with the Westchester/Fairfield CCFA, the Mount Sinai Children’s IBD Center is offering a program to bring together teens, ages 13-17, for support, activities and program planning for activities and programs where the teens’ expertise can be used to help others and to create awareness and support for IBD. If you are interested in participating please contact Bambi Fisher at bambi.fisher@mountsinai.org

IBDChat

A support group for children and teens with IBD and their siblings.  IBDChat is run by Bambi Fisher, social worker; Yuki Takahashi, child life specialist; and Clare Ceballos, nurse practitioner. IBDChat gives children and teens an informal and relaxed opportunity to meet others with IBD. Activities for the group have included art projects, cooking, writing and TV production for the Kravis Children’s Hospital KidZone TV.

For more information contact Bambi Fisher, LCSW

IBD Parent Chat

A support group for parents by parents with topics of interest to families of children and teens with IBD

Tuesday IBDdays

Every Tuesday afternoon, the full care-giving team of the Children’s IBD Center is available to you at the practice. Read More>

Family Resource Center

Available through the child life department in The Zone, 1184 Fifth Avenue, the Family Resource Center is a comfortable place created especially for the families of pediatric inpatients. It contains information, in print and online, about health and parenting. Families may check e-mail, get help with internet searching, or simply have a cup of coffee or tea and relax.

More information on the Family Resource Center

Lecture Series

The Center provides lectures and expert discussion panels 3 to 4 times a year. These education evenings are held at Mount Sinai in Manhattan as well as at other sites in New Jersey and Westchester County.
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Video Conferences

The Center holds regular video conferences on nutritional and medical topics to give any family, regardless of where they live or are treated, access to information and a forum for open exchange.  Video conferences are announced on our upcoming events page, via email and on Twitter.

Newsletter

A newsletter featuring articles about IBD, news on upcoming events and stories from patients. Content input from patients and families welcomed. Newsletters are mailed to families and posted on the website.
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